Showing posts with label autoimmune diseases. Show all posts
Showing posts with label autoimmune diseases. Show all posts

Monday, July 28, 2014

Constant Fighting

While fighting continues tot rage around the world, it also affects people who are trying to survive severe trauma from it. You can set aside politics and other factors. What you then have is normal human beings who didn't ask to be subjected to horrible things. While we're getting things done, it's also a non-stop battle to try and keep some sense of balance
You get no break. You have o idea of what it's like to have one day with no trauma  symptoms. You scream and fight to not fall apart. At night, more nightmares happen. Nobody will listen to you or help you. Even though it's a nightmare, you can't sit back and do nothing.

On the other hand, we have protection thru various benefits to help make sure that we're not homeless or go bankrupt due to being on disability. Got my Medicaid number early. The cards for this and other benefits should come in the next few weeks. Extra coverage will mean extra sources to go to to get the treatment that we need.

At times, we just sit and focus on trying to have some sense of being grounded. No noise or any other distractions. We scream and fight to not fall apart. Everything has to be screened. Many times, we have several sources live streaming, but we don't pay close attention. Just to have something in the background.

You can't sit back and do nothing.





Saturday, August 24, 2013

Trying to Cope

Today time to kick back for a while. Yesterday was long and stressful. I've been trying for almost a month to get two test results back that might involve long term treatment. Nothing in the mail, nothing on line. No call from my primary GP.

Then I find out that they had a IT problem that wiped out current copies of patients records. Fortunately they had my backup, so no need to go back in and redo the tests. I found out two things. First, I tested negative for Celiac's Disease. Now I can go back if I want to to a normal diet that includes gluten. Second, I tested positive for rheumatoid arthritis (one type of autoimmune disease).

The clinic never notified me of the IT meltdown. My doctor never called me about my test results. And now, I still can't get copies of my test results to use to try and get a second opinion about the arthritis.

How's your day so far?

One of the hardest things to deal with right now is long term horrible abuse. Since long term stress can hurt your immune system, does this mean that fighting to survive against something that's not my fault has made me sick?

In the meantime, I'm still following my holistic health routine. Right now, focus on health first and getting thru more appointments. Then, go back to finding the new jobs. Prioritize, but multi-task.

Any comments?